COVID-19: Information For People With Rare Diseases

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COVID-19: Information For People With Rare Diseases
COVID-19: Information For People With Rare Diseases
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Video: Effects of COVID-19 in people with rare diseases 2023, February
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COVID-19: Information for People with Rare Diseases

An estimated 400,000 people in Austria suffer from a rare disease. Whether these people belong to the risk group in connection with the coronavirus cannot be said in general. This essentially depends on the type of your underlying disease - currently there are more than 6,000 rare diseases.

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For people with rare diseases, all precautionary measures that also apply to healthy people apply in advance. In children, COVID19 infections usually run without symptoms, but children and adolescents can also transmit the virus more easily. The resulting measures within the families can be found under

  • AGES and
  • ÖGKJ COVID recommendations for parents.

Those affected who, due to their underlying disease, have an increased need for care by family members, caregivers or doctors, are particularly dependent on compliance with hygiene and protective measures. The specialized medical facilities that are responsible for the treatment of rare diseases in Austria have consequently switched to informing their patients at home, using telemedicine and, in the case of inpatient admission, responding to the special needs of the special rare disease. In any case, it is not recommended to visit the special clinics personally!

Generally, the victims of rare diseases is recommended, with the teams of specialized facilities telephone to contact, in which they are in care. There you will receive secure information on whether special measures need to be observed in the case of a specific rare disease. In many places, patients in the outpatient clinics were contacted personally. In addition, the clinic websites have already been upgraded at some locations, the availabilities of the specialized teams have been mapped and information letters and emergency leaflets have been provided. The most important information is continuously updated there.

Further information for people with rare diseases can be found at:

  • University Clinic for Pediatrics, Vienna General Hospital
  • University Clinic for Ophthalmology and Optometry, Vienna General Hospital
  • University Clinic for Neurology, Innsbruck
  • EB House Austria, University Clinic for Dermatology, Salzburg
  • ERN BOND, European Network for Rare Bone Diseases - Helpline

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